I’m a mom. A full-time caregiver. A nurse without the degree. A therapist, nutritionist, and advocate rolled into one body fueled mostly by coffee and grit. My daughter is disabled. She’s medically fragile. And this week, I’m watching a bunch of mostly wealthy, mostly unaffected politicians gleefully gut the very programs that keep her alive—thanks to the so-called “Big Beautiful Bill.”
Let me be blunt: this bill is a hack job.
There wasn’t even an attempt to start with targeted investigations. They didn’t look at places where fraud is actually rampant—like people abusing SNAP benefits, or landlords gaming the Section 8 system, or hospitals and clinics overcharging Medicaid with bloated, unexplained bills. No, they skipped all that. Went straight to the jugular.
They didn’t audit. They didn’t ask questions. They didn’t try to clean up known problems. They just started cutting.
Programs that took years of effort, sweat, and sacrifice to build are being erased in days. Waivers that allow families like mine to keep our children at home? Slashed. Reimbursements for vital supplies not covered by insurance? Gone. Payments for in-home caregivers—often the child’s actual parent? Axed.
And for what? Who is this really helping?
It’s not helping families. It’s not helping working parents of disabled kids. It’s not helping disabled adults or seniors or the thousands of Americans who live paycheck to paycheck while still trying to care for someone they love.
It’s padding the pockets of corporations, cronies, and campaign donors. It’s a band-aid over the ballooning deficit caused not by kids like mine needing diapers and feeding tubes—but by years of reckless tax cuts for the rich, bloated defense budgets, and unaccountable pandemic fraud that still hasn’t been investigated.
And let’s be really clear about this part: these cuts are happening so the rich don’t have to pay their fair share. That’s the truth. This isn’t about balancing the budget with compassion. It’s about protecting billionaires from taxes while forcing disabled kids, seniors, and working families to pay the price.
This isn’t reform. It’s cruelty dressed in fiscal drag.
It’s not brave. It’s not noble. It’s cowardice—aimed squarely at those who can’t fight back.
And if you’re sitting back thinking these cuts only hurt 'other people'—people with brown skin, accents, or families different from yours—you are dead wrong. Medicaid doesn’t ask for your party affiliation. Disability doesn’t check your passport. And when the safety net gets ripped down, we all fall. If you think you're 'owning the libs' or getting the last laugh by supporting policies that send vulnerable people to institutions or modern-day concentration camps, then I have to believe you serve a very different Jesus than I do.
So if you’re reading this and you’ve ever said you care about kids with disabilities, or Medicaid, or basic human dignity—now’s the time to prove it.
Call your rep. Call your senator. Show up. Speak out. And ask them, plain and simple:
"Who exactly is the 'Big Beautiful Bill' beautiful for? Because from where I’m sitting, it’s damn ugly."
—Terri aka Whackamama

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